We are looking for Māori and Pasifika who have been affected by Kidney Disease in New Zealand to to have a kōrero (phone or video chat) to understand the support services being provided to people living with kidney disease in Aotearoa.
If you are a patient who would like to take part, please download and read the Information Sheet.
Please read and sign the Consent Form on the last page of the Information Sheet and return the form to kidneynz@atlantishealth.com or give the team a call on 09 363 4838 and they can take your consent over the phone.
The main objective of this mahi (project) is to better understand patient experiences of kidney disease support services in Aotearoa and how these can be improved. The information provided will be integrated into recommendations designed to improve services for people living with kidney disease. A visual representation (or ‘map’) of the patient experiences will also be designed. This research is funded and approved by Kidney Health New Zealand, who have engaged an independent third party, Atlantis Health, to execute the project.
To take part you must have been diagnosed with kidney disease and be over 18 years old.
You will be invited to have a kōrero with someone from the research team (by phone or video chat) either as part of a focus group with up to 3 others (approx. 1.5 hrs) or if you prefer, you can just chat one-to-one with our researchers (approx. 30-45 mins). This will be recorded to help us make accurate notes for analysis. We will ask you about your experience and perceptions of support services provided to people living with kidney disease, especially at the point of diagnosis and when receiving dialysis, and for your ideas about improvements that might be useful. You may also be asked about your perspectives on equity and barriers to accessing support services.
To thank you for your time and participation, you will receive a $75 Prezzy card.
If you have any questions please contact Atlantis Health on 09 363 4838 and ask about the Kidney Health New Zealand research.
We want to talk to adult patients (aged 18 years or older) who have had a fistula, graft or line for haemodialysis, and can talk to us for about an hour in English. Patients can bring a whānau member or carer if they would like to. We can also organise a Māori or Pasifika support person to be present during the interview.
We will try to interview people who have had different experiences to each other to get a range of perspectives.
This research study aims to understand what is important to patients about the fistula, graft or line
they use for haemodialysis, and what is important when patients decide which one to use.
Understanding this will help us design research that is useful to patients
Being part of this research study will help us improve the experience of people who are treated with
haemodialysis in the future. We will also offer a $50 petrol or grocery voucher in appreciation of patients time and knowledge sharing.
The interview will take about an hour, and can be done in person or over the phone or internet.
If you are interested in taking part, please download and read the Information Sheet.
If you have any questions regarding this research please contact Kate Richards, macka823@student.otago.ac.nz or call Christchurch Hospital Switch Board on 03 364 0640 and they can put you through.
This project has been reviewed and approved by the University of Otago Human Ethics Committee, (Health). Reference: H22/132